Are you at risk for hATTR?

Hereditary ATTR (hATTR) amyloidosis is just one type of amyloidosis. It’s important to know which type you have to determine your best plan of action.

The key to hATTR amyloidosis is in its name. It’s an inherited condition and although anyone can be at risk, it’s more common in certain ethnicities. Knowing your family history and understanding the symptoms could help create a clearer path to diagnosis.

Why take the assessment?

hATTR amyloidosis is a rare disease but its symptoms are often similar to those of other conditions, leading to potential delays in diagnosis. Timing is critical because the sooner you are diagnosed, the sooner you could get access to treatment. The good news is, genetic testing can determine if you have the condition.

Are you at risk? Use this simple assessment tool to help guide your discussion with your doctor. It only takes 1 – 2 minutes to complete.

Find out more…

Hear from people living with hATTR amyloidosis

Resources

hATTR: A treatable, multi-symptom disease

Question 1 of 12

Do you suffer regularly from shortness of breath and/or wake up in the middle of the night unable to breath?

Yes No

Question 2 of 12

Do you have swelling (fluid retention) in your legs or other areas (waist, hands) regularly?

Yes No

Question 3 of 12

Do you regularly experience abdominal (stomach) pain, constipation, diarrhea/loose or watery bowel movements?

Yes No

Question 4 of 12

Are you regularly unable to differentiate hot from cold (for example, when getting in the shower or bath)?

Yes No

Question 5 of 12

Do you regularly feel numbness, tingling, burning or prickling sensation in the hands or feet, and/or diagnosed with neuropathy?

Yes No

Question 6 of 12

Do you regularly have difficulty with balance (for example, in the shower or at night-time or other times) or require aid to walk and/or move around, or feel faint?

Yes No

Question 7 of 12

Have you experienced unintentional weight loss?

Yes No

Question 8 of 12

Do you have a history of heart failure, irregular or racing heartbeat, and/or a pacemaker?

Yes No

Question 9 of 12

Do you have a history of carpal tunnel syndrome?

Yes No

Question 10 of 12

Do you have, or have you ever had spinal stenosis (lumbar, cervical or other)?

Yes No

Question 11 of 12

Do you have a family history of amyloidosis, heart disease, or a thick heart?

Yes No

Question 12 of 12

What is your family heritage or background?

Scandinavian

Asian

Portuguese or Southern European

United Kingdom

African-Caribbean

South American

Haitian

Other

Results

Thank you for completing the assessment

Based on your family history and your symptoms you may be at risk for hereditary amyloidosis (hATTR). Talk to your doctor about your risk and whether genetic testing is right for you and your family. In Canada, there are programs that make genetic tests available free of charge for people who may carry the hATTR amyloidosis gene.

Email your results

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Submit

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Download Assessment Results

Find out more…

Hear from people living with hATTR amyloidosis

Resources

hATTR: A treatable, multi-symptom disease

If you think you may be experiencing symptoms of hATTR amyloidosis, the first step is to have a discussion with your doctor. Bring this discussion guide to your next GP or specialist appointment – it covers everything you need to have an informed discussion with your doctor about hATTR.

Download Discussion Guide

TTR02-CAN-00119. Preparation date: 05.2021

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